Tuesday, September 25, 2018

'Naked and Angry' Meets 'Alert and Afraid'

I don't mean to scare any of you with my stories about Mom.  She is in advanced stages of Alzheimer's and it has been a long time in coming. We had a chance to prepare, and many years of good memories, laughter and mutual moments of enjoyment knowing that eventually things would change.  At some point we knew that the symptoms of advanced Alzheimer's would be unpleasant. Now that it is here, it's...um...well...there's no sugar-coating it; it has become very challenging and difficult! Mom is apt to experience mood-swings without warning, and while we have medication to help her with her agitation, it doesn't work well and we are witnessing an increasing number of bouts with an angry aggressive woman who is stubborn, argumentative and sometimes even exhibiting violent outbursts.  We are learning how to handle these events as well as we can, but we're not perfect and do not always react as well as we should.  So, for example, the other day when my mother  lost bladder control, soaked through her adult diapers, and was sitting on an unprotected upholstered chair, I asked her to stand up and move to the towel-covered chair that we assigned to her while I went to get her a fresh diaper and change of pants.  (It is her chair!  She knows that.  But she doesn't like having a towel on it and therefore sits on other chairs.)  Mom balked and told me in a nasty tone, "I can sit wherever I like!"

I told her that she had wet herself and was now wetting the chair.  I don't know why I said that.  She was only focused on the fact that I was telling her to move and didn't care what the reason might be.  I asked her nicely once again.  She gave me a pouty look and then turned away refusing to discuss further.  I reached over and grabbed both of her hands to help her get up off of the chair.  That's when Mom went off the deep end, (Think David Banner turned into the Incredible Hulk) shouting at me and telling me to leave her alone.  "Don't touch me," she yelled pulling her hands away and pounding her fists on the counter.

Again, I explained that she had to move and she said angrily, "You can't tell me what to do!"  ARGH!!!  I stormed out of the room. I was seething and wondering where I could find a stick of dynamite to blast her off the chair. (Would that be considered Elder Abuse?)  I began to laugh at myself as I envisioned something.  Let me explain; I have always been a fan of the silver screen and found that seeing some of life's more difficult moments as movie and cartoon characters makes it somehow tolerable. This time I chose Wile E. Coyote and Roadrunner. (For the record, I saw myself as Wile E. Coyote with the dynamite plunger in hand.)  As usual, I found a reason to turn my frustration into something funny.

Dealing with Mom's anger is an everyday occurrence.  We have gotten used to her negativity, her anger and her mood swings.  She goes from stubborn refusal to do what we ask to laughing and cooperative within minutes.  What we are not used to, and what consistently surprises us, is her new affinity for nudity.  At any given time, Mom will whip off her clothes  and present herself to the world naked and unadorned.  It is horrifying to look away for a minute only to find that she has removed her clothes when I look back in her direction.  The other day, sitting right next to her, I was working on my laptop.  I looked over and noticed that Mom had fallen asleep.  I seized the moment to check a website and focused on the screen.  No more than 30 seconds later, Skip walked into the room and bellowed, "Mom!  What are you doing?!"  I looked up to see that she had removed her blouse and was beginning to pull off her pants.  "Stop!" He commanded.  Mom glowered angrily and narrowed her eyes menacingly as I reached over to help her put her blouse back on.

"OW!" She yelled as I pulled the top back over her head. (I hadn't done anything to hurt her...Honest!)  I recoiled wondering if this was going to escalate into a violent outburst.  My sweet mild-tempered little mother was now like Stripe in the movie Gremlins.  I was experiencing a fearful moment trying to figure out how to diffuse Mom's anger before she began running amok.  Thankfully, the moment passed.  I breathed a sigh of relief.  She transformed into her old self somewhat like Dr. Jekyll after being Mr. Hyde.

The other day, I heard a woman telling everyone that her 10 month old baby was now walking and I reminded her that when babies become toddlers, mommies grow eyes in the back of their heads.  Well, here's another warning.  When we become caregivers we once again have to hone in on our sensory skills.  Listen for the slightest sound, watch vigilantly, and most of all, never, ever let your guard down.  Stay alert, and afraid...VERY afraid!

Tuesday, September 18, 2018

Why Are You Looking At Me Like That?


I often walk around shaking my head at my mother's antics.  Alzheimer's is so unpredictable.  Mom's behavior fluctuates constantly leaving me to wonder what she will do next.  One moment she is squirreling away dirty napkins and half-eaten cookies in her walker and the next she is pacing around the kitchen looking for a snack.  When I feed her, she takes a bite on-the-run and immediately returns to her favorite spot outside on the screened porch.  Her daytime antics are manic and frustrating since she has no understanding of what she is doing.  Her communication is nil and when she does speak it is muddled and unintelligible.  Imagine our surprise, then when we hear her speaking full sentences in the middle of the night.

Last night we were awakened to the sound of my mother's voice admonishing someone.  "Why are you looking at me like that?" she asked.   Then, she continued, "What's Wrong?" (pause) "I want a glass of water."  Skip got out of bed and trudged upstairs to deliver the glass of water and found her standing in front of the bathroom mirror talking to her image. Mom wore a scowl on her face.  No doubt the sight of her image glaring back at her was offensive, causing her to scowl even more.  I was glad Skip managed to get her the water when he did or there might have been a fist fight between Mom and the mirror.  

Trying to protect Mom from herself has become a full-time job.  She is perpetual motion and often finds ways to put herself in harm's way either by trying to eat something that is not meant to be eaten, or to wobble precariously close to a table edge.  Today, she tried to go down the steps to the patio as I flew to stop her.  "NO!" I shouted.  "Stop!"  Then approaching her and closing the door firmly I admonished her.  "You don't go out there." I still had visions of the face plant she did when she escaped outdoors and down the step.

"I didn't do that," she replied.  (It's amazing how Mom can speak in full, understandable sentences when in the midst of proclaiming her innocence.)

"Mom, look...you opened the door," I told her pointing at the door.  

Again she denied it only this time she told me "Oh, THEY did that."  ('THEY' by the way, seem to be responsible for all things that are done for which my mother does not wish to take responsibility.)

To say that this is a trying time would be a colossal understatement.  I am equally torn between laughing at the bizarre woman who resides with us and feeling tremendous sadness over having lost the logical, organized and fastidious woman she once was.  From moment to moment I battle my demons who rail in anger against this huge inconvenience in my life, and the loving daughter who remembers the 80 plus years of joy she brought to all of us.  I want to reach out and hug her, hold her, feel her warmth, and then she does something that instantly pushes me away in disgust.  

I detach myself from the lesson that is delivered to me.  I recognize it and marvel at the clarity while fighting each new test that is delivered.  It is the lesson we sometimes never learn; a test we do not pass.  Will I succeed?  Today I have failed once again.  Perhaps tomorrow I will conquer my human failings.  I am a daughter.  I will tap into that love...that familial tie and allow the mother-daughter bond to supersede the impatience I feel.  I will try, once more to look for the humor.  It's there.  Oh yes it is!  She will undoubtedly blame that other person--'THEY' will do something that makes me cross, and when I admonish her or scold her she will offer to punch 'THEM'.  I expect to see her tussling with an unseen combatant hoping that she doesn't injure herself but all-the-while cheering her on as the victor!


Tuesday, September 11, 2018

When it Rains, it Pours--LITERALLY!

What a week it was last week!  Mom has been her usual self and I have had a full week of watching her.  She has manically walked in and out of the house to the porch, the kitchen, the hall, the kitchen, the porch.  Over and over...round and round she goes.  Each time, she leaves the door to the porch open and I can practically see the dollar bills flying out the door as the cool air escapes into the hot muggy outdoors. In between these meanderings, Mom always circles the kitchen touching everything that is left out.  If food is out she snips off a piece, samples, bites, or pokes her finger into whatever the item is.  This is a problem because her hygiene is so poor I cannot keep up with where her fingers have been.  I shudder just to think about it.  The other day, Skip made the grievous mistake of leaving half a peach out on the counter.  Mom had just finished a large lunch including her fill of peach slices, but in her demented state she didn't remember this fact and so she stood up from her place at the counter, (some sandwich still on her plate) and picked up the peach.  My attention having been diverted for a moment didn't notice this and therefore it wasn't until Skip returned for his remaining peach half that I saw what had happened.

"Um...did you take a bite of this?" He asked accusingly. He held up the peach with a large bite right out of the center of it.

I laughed out loud.  "Really? Would I do that?!  If I wanted a bite of your peach I would have taken a knife and sliced a piece off."

Skip nodded in agreement.  He knows my habits and realized immediately that he was 'barking up the wrong tree'.  Then he cast a dark look at my mother.  Imagining the germ-infested peach, he handed her the rest of it.  I felt sorry for him because it was a really lovely peach. (We haven't had many of those this year.)

Caring for Mom is a full-time job, but there are always other things in our lives that keep us spinning, our lives in turmoil, and our days full of distractions.  For example, it is currently hurricane season here in North Carolina which means that when a storm develops out in the Atlantic, we immediately go into our hurricane preparedness mode.  Store shelves are stripped of bread, water and milk. (It's the same if snow is predicted in the winter.)  I don't quite understand this because having been a native Californian my experience in natural disasters was limited to those things one cannot predict: brush fires and earthquakes. Both happen so fast, one doesn't have time to think about what to do.  In California, one just sleeps fully clothed with wallet and cell phone in hand along with car keys and extra batteries in a hip pocket!  I have learned though.  OH MY, have I learned!!!  When in the South do as Southerners do.  Get yourself to the grocery store and buy everything off the shelves, girl.

A couple of days ago, I decided that with the projections for a major hurricane to hit our area in 6  days, maybe I should send Skip out to look for some supplies.  Well, obviously I wasn't the only one thinking that way.  In fact, the entire county seems to have been of one mind and the shelves had already been stripped bare.  Sadly, the one thing that we REALLY needed was nowhere to be found.  We needed a generator.  This was not a convenience but a necessity if we lost power because our sump pump would stop running and (as we experienced in the last hurricane) our basement flooded.

So...Skip went out looking in three or four surrounding counties to see if he could find a generator for the sump pump.  We weren't looking for anything special.  Really, anything would do.  Since Skip was running around on this errand --ALL DAY!!!--I was stuck dealing with my mother without respite.  She was in a particularly zombie-like mood wandering to and fro.  I was trying to get some work done, but between Mom's meanderings, Skip's phone calls asking me to check various websites for availability of the elusive generators, and the oppressive heat, I was not in the best of moods.  By evening, we finally resolved the generator problem when we found one in Charlotte (three hours drive from here).  However, with our daughter and son-in-law living in Charlotte, we could have them pick it up for us and deliver  since our son-in-law was meeting Skip at a halfway point between here and Charlotte so Skip could drive our granddaughter, Julie to a special dance lesson in Raleigh.  Don't even begin to ask me about how we worked that one out and how many phone calls it took for us to figure out that Julie could leave school and make it in time to take a lesson from a choreographer who is well-known in the dance world...an opportunity that just could not be missed!

That night when we finally settled down after dinner and decided to rent a movie to relax and enjoy after putting Mom to bed.  We were just getting into the movie when we heard a blood curdling scream.  I realized it was coming over the monitor system.
"That's Mom!" I shouted, getting up to run to her room.  Before I reached the door I heard her crying out, "God help me."  Now I  KNEW something was wrong.  I ran into her room preparing myself for whatever disaster awaited me.  Mom was sitting on her bed, eyes wide as saucers, telling me that someone was screaming at her.  "That was YOU," I announced.

"No, no.  Someone was screaming and telling me to take it off the mungo muddle..."  Her aphasia had kicked in so I have no idea what she was saying after that.  I finally convinced her that she was having a bad dream, rubbed her back and calmed her down enough to get her back to sleep.  I was about to step back out of her room and return to the movie when she popped her head up, looking like something was terribly wrong.

"What's the matter, Mom?" I asked. There was no response.  I came closer understanding that she had difficulty hearing me.  "Mom?  Is something wrong?" I asked two more times before she replied.

"I have to go to the bathroom," she told me getting up.

I helped her to the bathroom waiting patiently while she moved slower than a snail.  When she finished and opened the door I noticed that her wet diapers were placed on the sink and there was a puddle on the floor.  The toilet was the only thing she didn't use.  "Clean up on aisle five!" I announced over the monitor and Skip came running up with the wet mop.  The movie would have to wait another 15 minutes.

That brings me to my reason for writing this today.  I had a live webcast I was invited to do today as a guest author.  The last time I did something like this I was invited on a podcast and my internet connection was very poor.  We kept disconnecting and the podcast was cancelled.  I was frustrated and angry when my husband explained that my location I chose for the interview was a weak location.  Therefore, I tested the webcast connection and location the week prior to the live show to make sure I had a perfect connection, location, lighting, etc.  I told everyone that I was doing this so not to call me during that time.  Just to be safe and to avoid those pesky robo calls that occur with regularity every 20 minutes or so, I turned all of the phone ringers on mute.  Then, I told Skip that we should have lunch early just to make sure that there would be no noise coming from the kitchen during the show.  I got my lap top set up in the library, set my chair at the perfect angle, adjusted the lighting and even put a note on the front door saying, 'DO NOT DISTURB.  BROADCAST IN PROGRESS.' I needed to advise our son, who often comes downstairs from his apartment to say 'Hello', but I was out of time so I told Skip to text him while I grabbed a sip of lemon water and returned to my laptop.

With all of the preparation, one would think that nothing could go wrong.  Au contraire.  This is MY life we're talking about.

About one minute before going live, my mother's elder monitor began to beep loudly.  Having been told that the video broadcasting equipment was very sensitive to the slightest sound, I made the decision to take a nose dive to turn the interrupting speaker off.  Only, I couldn't see how to do that so I unplugged it and threw it across the room returning to my seat just in time, adjusting my hair, my lipstick and my blouse in time to smile broadly and greet the hostess online.  Whew!  The guest panel was introduced with not a moment to spare.  As the hostess asked each of us to introduce ourselves I noticed that my screen froze, I hurried to refresh the url and was fortunate to make it back in time for her to get to me.  I was dividing my attention between the introductory comments and my intermittent Internet connection.  When a question was asked of the panel, I couldn't wait to answer but as I spoke, once again the screen froze, and this time there was no recovery.  My Internet was down.  I had to exit and try again.  It took much longer than the first time and when I returned the panel had moved on.  The hostess very kindly returned to me to get my response and I was able to complete my thought but not without being distracted.  I had lost my train of thought in the moment of panic and didn't recover as well as I would've liked.  Being used to my frantic days, I have learned to think quickly and found something intelligible to say.  We moved on to another subject and suddenly, in the background my phone in the kitchen rang.  What?!  I had turned all the ringers off.  How could that happen.  Skip was outside and had to run in to catch the phone on the second ring.  I heard his voice in the background and quickly put my laptop on mute.  What else could go wrong?  I didn't have to wait too long.  Suddenly the door swung open from the screened porch.  Mom came barreling inside complaining that she felt like she was going to throw up.  She was followed by our dog who wanted to play and my husband who was trying to maintain order and silence.  I tried to ignore them and continue listening to the discussion hoping to be able to keep my wits about me in view of the pandemonium in the other room.  A question was asked but I missed it because my computer froze.  The hostess asked me when I reappeared if I had a comment.  (About what?  Uh...um...'NO').  All in all my computer froze five times and I tried to follow the show as best I could, but felt kind of like a blind person in a paint store.  The final straw was  when the side door opened and our son came downstairs looking for all of us.  He wandered around the kitchen, then went back upstairs to the attached apartment closing the door noisily.  (UGH).  A little while later, his girlfriend started her car just under the library window then stopped, went back inside, closing the side door, then reopening and returning to her car.  (Later, I found out that her car was not acting right and they had called a tow truck.) There was more door slamming and then silence just as the hostess was saying goodbye and thanking her guests.  I mutely waived goodbye smiling broadly and exited the show.  Taking a deep breath I looked for Skip.

"How'd it go?" he asked innocently.

"How'd it go?  HOW'D IT GO?!  OH MY GOD!!!" I yelled. "I live in a mad house, that's how it went."

Skip looked hurt.  "I'm sorry about the phone."

"...And Mom, and Kira, and the doors, and Bill coming in.  I thought that you texted him."

"You said you were putting up a sign," he answered defensively.

I rolled my eyes.  What was the point of arguing that I told him to text our son.  Instead I told him about the Internet issues.

"Well that's not the strongest signal in the library," he answered.

"It was fine last week," I reminded him.

"Well, that's because all of us weren't at home and on the Internet at the same time."  It turned out that Skip was watching the weather reports, Bill was up in his apartment on the Internet and there were probably at least three devices accessing the Internet as well.  My eyes were bugging out and my head was exploding as I tried to take in this last bit of information.  To make matters worse, Skip had to leave to go pick up our granddaughter and didn't have time to talk or to make me feel better.  Skip left the room to move on to his next task leaving me with my mother who decided that going in and out of the house leaving the door open each time was how she wanted to fill the rest of the afternoon.  I resigned myself to the fact that my life is destined to be this way...crazy, funny (if you choose to laugh) and certainly nothing boring about it!

Skip just announced that our air conditioner has stopped working.  We have a call in to the air conditioner people but I won't be answering the phone.  I will be the crazy woman sitting in the padded cell laughing maniacally.