We have noticed that Mom's aphasia has become more of a regular
occurrence. It used to be an occasional anomaly but now, with regularity
we hear strange words and outrageous sentences on a daily basis. A couple
of days ago, Mom got up and walked out of the room then returned within thirty
seconds. I asked what she was doing and she answered, "I was reading
the...uh...regular people."
I didn't know what she meant. I asked for a clarification.
"I...er...I was counting the...place-ter."
"What?"
"The plates," she corrected.
"What plates?" I was looking around wondering what she meant.
"You know! For the people." (Okay, I was beginning to
catch on. It was close to dinner time. Perhaps she thought that she
would set the table. Who knows?)
I tried to get more from her and she provided some unintelligible words that
meant nothing. There would be no understanding and I finally gave up
trying to understand the 'coded' message.
Just then Skip walked in the room. He mentioned that his birthday was
going to be the next day and Mom immediately brightened up. With a broad
smile she told him, "Congratuburstans! And many more." I
couldn't help it. I began to laugh. The word just tickled my funny
bone. The more I laughed the more it repeated itself in my brain.
'Congratuburstans' . Ahhahahahahahaha. I had to get up and leave
before Mom noticed that I was laughing. I didn't want to laugh at her but
I couldn't help myself. There are moments of hilarity that make me feel
guilty. However, I quickly recover reminding myself that laughing is
helpful...laughing is therapeutic. These days I definitely seek anything
that I consider therapeutic to help me through some of the rough patches.
The rough patches are becoming more and more numerous though. While laughing
over a funny word is something noteworthy, I often must seek the opinions and
reactions of others to find the humor in a situation, action or incident.
An example occurred today when I discussed the events of Skip's birthday
party with a fellow caregiver. I recounted the frustration I had felt
over the bizarre behavior Mom exhibited during the party. I had
worked hard to keep it a surprise and even fed Mom lunch ahead of time so I
wouldn't give any indication that within 1 hour there would be food at the
party. Skip was surprised when guests arrived with potluck dishes and
abundant amounts of food and snacks. Unfortunately, so was Mom. She
was thrilled to see every manner of snack, appetizers and tasty morsel present
itself on the dining room table for her munching pleasure. I reminded her
that she had eaten lunch earlier. I told her to 'go light' on the snacks
because it would be easy to overeat and then become sick to her stomach
(something she does with regularity). I immediately realized that this
was a futile conversation. Mom was glued to the table. She waited
until I turned my back. Then, her hands flew to the chips, the dips, the
cookies, the sausage balls. She grabbed anything and everything her fingers
could reach with the agility of a professional pilferer. Squirreling her
delectable treasure away in her walker or within the folds of her shawl, she
would exit to enjoy her 'booty' privately and without risk of detection.
At one point I looked up from my seat in the living room where I was enjoying a
conversation with our daughter in time to see her rushing out of the dining
room into the foyer where she removed something from her mouth and threw it
into a potted plant.
"What are you doing?" I yelled. She ignored me. Skip
was right behind her though and looked into the planter to find a shrimp
tail. Mom was still chewing the piece of shrimp while saying that she
wasn't eating anything. My daughter got up and suggested that she make a
small plate of food for my mother to keep her busy and out of the dining room
where there were too many choices and certainly foods that she shouldn't
eat. We sat Mom down at the kitchen table with her spread which she
dispensed with quickly and efficiently. Before I turned around she was
back in the dining room. I found shrimp tails deposited in various hiding
places and became quite cross with her. While tempted to say that she
didn't know any better, it was clear that she was a woman on a mission each time
I told her that she had probably had enough to eat. She either ignored me
or would circle around the other way to avoid me and then enter the dining room
from the other side.
Our son, Bill finally closed the dining room door as Mom was headed in for
her eighth or ninth visit to the table. I watched as she stopped for a
moment, then rapidly turned her walker mowing down a couple of guests as she
rushed to the other door before our son could get to that side. Who says
that 97 year olds can't be agile?
Later, after the guests had left and the food had been put away, I noticed
that Mom was eating something as she sat watching TV. "What did you
find, Mom?" I called to her. She hastily hid the morsel inside her
walker as I approached. "Mom? What is that?" I repeated.
"What?" she asked innocently. I began explaining how she
couldn't sneak food into her walker, her shawl and myriad other hiding
places. She gave a blank stare and in total exasperation I walked away
deciding that it wasn't worth my energy to deal with it. I was tired and
ready for the time when I could tuck Mom into her bed for the night. A
little while later, as I was helping Mom into her nightgown I asked her to hand
me her hearing aid. She reached up to her ear and gave me a confused
look.
"ARGH", I thought. "Now she doesn't know how to remove her
hearing aid!" Then I noticed that her hearing aid was not in her
ear. "Where is it?" I asked her knowing full-well that she
wouldn't be able to tell me. I shouted for Skip to look downstairs and I
continued to help her into bed. When I returned to the family room Skip
was holding the hearing aid and telling me that he found it. "Where
was it?" I asked.
"In the trash." We both sighed
My friend listened sympathetically but also laughed loudly as I described
the events that left me frustrated and exhausted. I began to realize how
ridiculous and crazy everything sounded to the outsider. Thinking about
it, I began to laugh as well. Soon my mood lightened as I considered the
funny side...the jokes that could be made. Unwittingly my mother was
providing lots and lots of material for our stories, our memories, our
reminders of family gatherings, occasions, and times that we will recount in
years to come not with anger, exhaustion and frustration but with smiles,
laughter. and perhaps a few reminiscing tears.
No comments:
Post a Comment