The phone call came around the time we were getting ready to go to bed. "Mrs. Bryan?" The caller identified himself as someone from my mother's hospice service. "I am very sorry to tell you this..."
I didn't hear much after that. It was over. The long journey had come to an end. The finality of it hit me immediately. My mother was gone and I found myself unable to control my voice or my tears. I hung up quickly and sat stunned, eyes leaking alligator tears. Skip, my sweet husband, hugged me and comforted me but he, too was needing comforting and we clutched at each other. Moments ticked by as we processed the information. A loved one dies. It happens to everyone. 'We were expecting it. It is a relief that she is finally at peace. She's in a better place.' You know? All of the things one says...all of the things we say.
Emotion was soon replaced with rational thought. We must tell our children, our grandchildren, other family members. There was no time to grieve. I called our daughter and opened my mouth to speak the words but found only a small sob. I gulped it down and tried to speak, hesitating, telling her only the most important words and then hanging up. Our son, who was visiting from Colorado came downstairs with his girlfriend, Christina and they hugged me, sat with me, talked in quiet monotone telling me all of the things that one says at that moment. It seemed like a long time but in retrospect I realize that the moment dragged on as it often does when one is overwhelmed. In reality it was maybe only twenty or thirty minutes. Soon we were reminded of funny things, memories that made me laugh. "Remember how she tried to run over Christina's cat with her walker?"
"Yeah, she hated that cat." I smiled through my tears.
I thought about all of the stories, a lifetime of laughter. I wrote so much about my mother. I knew when I wrote, that I would someday re-read my words and gain solace when she was gone. Now I thought of my writing and was so grateful I had done it, so happy I had pushed myself when my eyelids drooped and I wanted to go to bed. This was so special now. I had memories that were permanently chronicled. In time we'd forget the little details, the small moments. I felt comforted by the fact that I would have a reminder. As raw and new as the emotions were just then, I was also reassured by this thought.
I became introspective and quiet, telling myself what I must do next. I sent everyone to bed and began my announcement which I would send out via email and social media to everyone. I dispatched my duties quickly without focusing on how bone weary I suddenly felt. The sadness had crept into my body and had worked its way into every cell. I stood up and turned off the lights not even aware that my cheeks were wet with tears. I longed for sleep, to dream of happier times, of the mother who used to be. Instead, I walked outside and looked up toward the heavens. She was gone. She lived a long, long life (one month shy of 100 years!) but it was as one small star in the sky when one considers eternity. Still, she left an indelible mark on our hearts.
The night was clear and warm. The stars twinkled brightly. There were still a few remnants of a meteor shower that had passed through and as I gazed upward a small meteor shot across the sky, it's light extinguished at the end of its journey and in that I saw what I needed to see. My mother...the bright light filled with joy, smiles, exuberance, energy, kindness, sweetness, talent, creativity, knowledge, beauty, grace, wisdom, enthusiasm, devotion and most of all love, had streaked across the sky and her light was extinguished. It was gone.
I know, I know. Humans are not forever. Their names and graves are soon forgotten save a few who have historic recognition. The billions who are here today will be forgotten tomorrow. And yet, there is something to remind us of our predecessors. They toil and teach, expand, and build upon the very foundations that created humanity. Mothers give birth and nurture their young creating a living legacy so that when their light is extinguished there are still others like stars in the sky...billions and billions of stars in the sky.
It has only been a few days to get used to being an orphan. Now I must face the future as the elderly parent. There has always been the older generation in the past and even as they died off, my mother remained. Now it is different. I am the older generation. But it was just yesterday...no...we are all just a streak in the sky.
I look at the calendar and see that it is Mother's Day tomorrow. I haven't thought about it. How will I feel? I pray that I will be a strong matriarch encouraging my children and grandchildren to carry the torch into the future as my light begins to dim. I'm not ready yet but someday...someday. For now, I think about the mother I had and I am grateful. Tomorrow I will pay tribute to her in ways I cannot guess yet. Perhaps we will tell stories and share memories. We will drink a toast to her life and shed a few tears. When they leave...when they are all gone, I will permit myself to feel the emptiness of a Mother's Day without my mother. But that will not last. My thoughts do not reside in melancholy. I look around and see her incredible influence on all of our lives, and celebrate that joyous time when her light flashed brightly...brilliantly. It lit up the room and our lives in ways that I can never truly express. She will forever be my mother...my loving, beautiful mother. Happy Mother's Day, Mom.
Showing posts with label dying. Show all posts
Showing posts with label dying. Show all posts
Saturday, May 11, 2019
Sunday, December 3, 2017
In the words of Dylan Thomas: 'Do Not Go Gentle...'
I cannot believe that it is December again. I am not ready for another holiday season and yet, before I know it, it will be over. I feel like if I blink it will be Spring. It speaks to the importance I MUST place on each moment. I have allowed the moments to slip by. How else can I explain this year? The days...often filled with frustration, stress, worry and exhaustion have raced by. Wasn't it Easter just yesterday? Wasn't I celebrating the arrival of 2017 a moment ago?
Ah, sadly, my mother is slipping away all too quickly. How do I slow the days down? How do I hold her last moments (so infrequent) of lucid thought? I looked back to a year ago. I wrote about the hectic days, the craziness that precedes Christmas. At that time my mother was receiving hospice care. We thought that she was experiencing her last days. Suddenly, she bounced back -- a full recovery! It was a Christmas miracle of sorts. I worried that at any moment she could take a turn for the worse and lapse back into the comatose state she was in that prompted a call to hospice in the first place. But days and weeks turned into months. My productivity slackened as I spent more time with her, watching, caring, administering, but mostly just sitting. Her interest in everything had waned. Her communication was minimized and her comprehension was severely limited. So why didn't the days drag? Why is it that the less I did the faster the days seemed to fly by? Isn't that counter-intuitive?
I have gone over and over this past year's events; the conversations with friends, the dinners with family members, the laughter and good times, the deep discussions, and playful moments with my spouse. I thought about the entertaining we did, the tea parties, the small dinner parties, the funny moments with Mom and the not-so-funny moments that Alzheimer's brings as well. None of it...NONE of it was more than a moment ago, I tell you. What a nasty trick the Universe plays on us. The older we get and the less time we have, the less time it takes to get there. I am suddenly reminded of the poem by Dylan Thomas which made no sense to me when I was a young girl studying famous poets. The lines resonate with me now: 'Do not go gentle into that good night. Rage, rage against the dying of the light.' Well, I am raging indeed! I am raging for my mother who cannot speak to it herself. I am raging for myself as I witness the limited time ticking away. I am raging for all of those people who helplessly witness lost time with loved ones and wish that they could harness the minutes to hold them for just a while longer.
Tonight as I go to sleep I will focus on the minutes. I will treasure each second, each breath with a new-found appreciation. And tomorrow, as I awaken to a new day, I will promise myself to enjoy the time that I sit with my mother doing absolutely nothing but sharing space and air together. She may not think about it, nor remember it, but I will do so for both of us. I will look at her gnarled arthritic hands, her face lined with years of expression, from love, disapproval, smiles and frowns, joy and sorrow. I will look at her silky white hair lying limp and thin on her pink scalp. I will apply lotion to her wrinkled skin hanging with uncertain direction off of delicate bones. I will marvel that a person of 98 years is still able to be as mobile, as agile while she lifts her legs to assist me in putting on her socks. Her questions, her comments, as limited as they may be will register in my brain and store in my memory. "Who am I?" I will ask her. She will answer one of her many ways. "Are you my neighbor? Are you my mother? Are you my friend?" I will smile. "Yes, I am," I will agree to whatever she chooses to define me. I will take it in, all of it, because it will be a day from now or a year from now that I will look back and rage against the diminishing moments..."Where did the time go?"
Ah, sadly, my mother is slipping away all too quickly. How do I slow the days down? How do I hold her last moments (so infrequent) of lucid thought? I looked back to a year ago. I wrote about the hectic days, the craziness that precedes Christmas. At that time my mother was receiving hospice care. We thought that she was experiencing her last days. Suddenly, she bounced back -- a full recovery! It was a Christmas miracle of sorts. I worried that at any moment she could take a turn for the worse and lapse back into the comatose state she was in that prompted a call to hospice in the first place. But days and weeks turned into months. My productivity slackened as I spent more time with her, watching, caring, administering, but mostly just sitting. Her interest in everything had waned. Her communication was minimized and her comprehension was severely limited. So why didn't the days drag? Why is it that the less I did the faster the days seemed to fly by? Isn't that counter-intuitive?
I have gone over and over this past year's events; the conversations with friends, the dinners with family members, the laughter and good times, the deep discussions, and playful moments with my spouse. I thought about the entertaining we did, the tea parties, the small dinner parties, the funny moments with Mom and the not-so-funny moments that Alzheimer's brings as well. None of it...NONE of it was more than a moment ago, I tell you. What a nasty trick the Universe plays on us. The older we get and the less time we have, the less time it takes to get there. I am suddenly reminded of the poem by Dylan Thomas which made no sense to me when I was a young girl studying famous poets. The lines resonate with me now: 'Do not go gentle into that good night. Rage, rage against the dying of the light.' Well, I am raging indeed! I am raging for my mother who cannot speak to it herself. I am raging for myself as I witness the limited time ticking away. I am raging for all of those people who helplessly witness lost time with loved ones and wish that they could harness the minutes to hold them for just a while longer.
Tonight as I go to sleep I will focus on the minutes. I will treasure each second, each breath with a new-found appreciation. And tomorrow, as I awaken to a new day, I will promise myself to enjoy the time that I sit with my mother doing absolutely nothing but sharing space and air together. She may not think about it, nor remember it, but I will do so for both of us. I will look at her gnarled arthritic hands, her face lined with years of expression, from love, disapproval, smiles and frowns, joy and sorrow. I will look at her silky white hair lying limp and thin on her pink scalp. I will apply lotion to her wrinkled skin hanging with uncertain direction off of delicate bones. I will marvel that a person of 98 years is still able to be as mobile, as agile while she lifts her legs to assist me in putting on her socks. Her questions, her comments, as limited as they may be will register in my brain and store in my memory. "Who am I?" I will ask her. She will answer one of her many ways. "Are you my neighbor? Are you my mother? Are you my friend?" I will smile. "Yes, I am," I will agree to whatever she chooses to define me. I will take it in, all of it, because it will be a day from now or a year from now that I will look back and rage against the diminishing moments..."Where did the time go?"
Sunday, November 20, 2016
Circles
Circles
She holds the crystal ball within her withering hands.
What do you see, I
ask.
She gazes intensely and then shakes her head slowly.
I see nothing, she replies.
I understand.
Her age...her dementia...only sees the past
And refuses to look to the future.
There is none.
Her mind does not think beyond the moment.
Yet, I wonder, do any of us see what has been laid out for
us?
Look deeper, I encourage.
I hope, I dream, I wish that she could look to the future.
Could she, would she look forward to a time of transition?
Might she think about those who await her in her afterlife?
Does she still believe?
Carefully I remove the orb and place it in its golden
sparkling stand.
It glows magically and I imagine that I can see what my
mother can no longer visualize.
There he is...my father.
He is smiling and beckoning lovingly.
There are my grandparents all with arms outstretched.
Siblings long departed wave and surround her.
They call to her, my mother, who walks upright with a spring
in her step.
She is no longer silent, unsmiling, confused.
She has found the memories she had forgotten.
Suddenly she sees and knows -- from birth to death,
Her life has been so full.
She remembers it all.
The childhood filled with love.
The friends, the activities, the struggles of the great
depression.
The soul mate who met her so young, so innocent, so ready to
give her heart away.
A life well-lived through wars, hardship, births, deaths,
joys and sorrows.
Achievements and honors, pride and laughter; these are the
things she remembers.
A full circle, contained within an orb.
An embodiment of a life, full to brimming.
Labels:
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losses,
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when one departs.
Thursday, October 6, 2016
Exiting
Exiting
Mom sits in her chair, sleeping, in front of the television. It is as it has been for three weeks: this
new phase, this sleeping phase, this shutting down. There is no wandering about, no blowing the
nose, no fiddling with buttons, fabrics, tissues. There is no interest in food, in what is
going on in the kitchen, in who is coming and going. There is no discussion, interaction (other
than my occasional questions as to how she feels or is she hungry, warm enough,
or does she need anything.)
How I wish that I could have those things that drove me
crazy only a few short weeks ago. How I
want her to get up and follow me as I leave the room like she did before. If only she would wander about going from one
spot to another with her walker. Could
she, would she walk to the door and gaze out the windows to remark about the
weather? Might she comment about the
television show we are watching just once more?
Is this the new...maybe the last phase of her life?
I feel empty, resigned, and oh so sad. Only last month I commented angrily that
sometimes I don't like her anymore. How
could I have said that?! HOW? Just at that moment, I didn't like who she
was. Just at that moment, my inner child
had risen to the surface to speak her truth.
Now I look at this shell of a person -- the mother that I knew is gone,
and I mourn her passing. Still I cling
to the small spark of life that still remains within her. All of my highbrow philosophical
pronouncements, my understandings so wisely dispensed melt away as I am reduced
to the child who yearns for her mother, her security blanket, her confidant,
her cheerleader, her best friend, her safety net, her familial link to her
identity, her nurturer, her lifeline.
Shutting down.
Exiting. Confused. Disinterested. Aphasic .
Partly here and partly in another realm...the afterlife? Is it real?
Is she already seeing glimpses of those who await her, who welcome her
as she briefly visits with the promise that she will return to them soon? I want to tie a rope around her and pull her
back...yank hard so that she will return to us a whole person. Ah, but she is too weak, too fragile, too
tired. It is time. Yes, I know it and she knows it. Still she fights it as we all do. She struggles to rise from her chair
complaining that she no longer has the leg strength to do so. She experiences pain that I do not understand
but still hasten to administer drugs to deaden the hurt and bring her comfort.
I cook her favorite foods but she cannot eat them or enjoy
them. She forgets what they are and no
longer recognizes the difference between one food and another. I remind her to finish the small bits of
nourishment and encourage her to drink some water. Another day passes. Life continues. Sometimes...well, actually, often, my eyes
fill with tears and they spill over just when I least expect it. I miss her so! I miss her presence, her laughter, her
engaging personality, her exuberance, her joy.
I miss her intelligence, her quick wit and her talents that she used to
display. I struggle to find meaning and purpose to
this. She opens her eyes, briefly, and
smiles at me. I am encouraged for the
moment. I ask her if she would like some
tea and she agrees readily. Before the
water is heated she is back asleep. I
sigh deeply, despairingly and then with resignation I go about my day; walking
quietly around the slumbering woman who sits in her chair, in front of the
television.
Thursday, July 14, 2016
A Strong Reminder
I spend my days caring for my mother with additional work
responsibilities and sometimes a social call or two. My days are busy but not always
fruitful. Often, I feel disappointed and
frustrated, even angry at the end of the day.
Yesterday, after dinner, I asked
Skip to come with me to run an errand.
We took Mom of course since there is no other option. I truly would have preferred to be alone with
Skip but getting out on our own is not possible since we have to prearrange a
caregiver to come to the house. The
Summer evening was beautiful. There was
a storm building in the West and the sun glowed behind the large clouds
shooting its rays between and around them.
As we drove we remarked about the ever changing skyscape marveling at
the beauty of nature. It was a totally
rejuvenating moment. I arrived home feeling refreshed and calm. I put Mom to bed and enjoyed an entertaining
program on TV. Skip was busy answering
emails across from me in the family room but we sat companionably in the room
making small comments back and forth as the evening progressed. At bedtime I congratulated myself for
overcoming my stress.
This morning I turned on the news and heard about deaths,
tragedies, uprisings, demonstrations, political battles, violence, hardship. It was too, too much for me. I wanted to bury my head in the sand. My mother sat beside me silently. I regarded her as she repeated a behavior I
corrected. "Put your dirty Kleenex
in the trash," I counseled her for the hundredth time. She unwrapped the tissue from her finger and
placed it in the trash bag. I reminded
her just how disgusting it was for her to blow her nose and then handle the
tissue with her fingers. I was
immediately aware of how I felt: stressed and impatient. I had allowed the morning to 'get to me' and
was reacting in spite of myself. Where
was my sunset? Where was my calming and
companionable moment with my husband?
I opened my
emails. I read an email from a friend
who told me that her husband had cancer.
It was a shock almost like a slap in the face. I was stunned. So many of my friends, neighbors, and loved
ones have cancer or other life-threatening illnesses. Once moment they are fine...healthy and the
next they are told that they have been given a finite time to get their affairs
in order. It is pervasive and a constant
reminder that our days are numbered.
I began thinking about how disruptive this news would be in
one's life. Yet, when we are reminded that our lives are unpredictable,
being given the news of a terminal illness is an opportunity to change things,
to prepare, to call old friends, to make amends for things we have done that might
have been wrong. The chance to say
good-bye and to allow for closure is a way of facing our imminent death with
grace.
As I considered this I gradually came to realize that
regardless of all of the reminders, (and even my own philosophy) I had allowed
myself to become numb to the minutes and hours that I was wasting in the short
period of time I had left with my mother.
For that matter, in the overall scheme of things, there was only a short
period of time in my own life -- even if I lived to be ancient . I saw how quickly my years had passed. I wanted to hold each moment, to relish it
and celebrate it. I wanted to reach out
to everyone and tell them to do the same.
How could we waste time on petty grievances, on ugliness? Why would we want to experience or condone
negativity? THE NEWS!!! AURGH. I turned off the morning news...the invasive, omnipresent malevolent influence on my well-being and attitude. Once the news was not broadcasting it's negativity I tapped into that more positive part of me. I looked at my mother and smiled at her. I spoke gently and patiently reminding myself
that her days were counting down and unwinding.
I am once
again reminded to look at things differently...with more appreciation...with
less anger, disappointment, impatience, negativity. Yes, it is sad that
our bodies fail us, that our systems cease to operate effectively, that disease
and disabilities overcome our health. It is a reality that we all must
face but it doesn't make it any easier. All we can do is move forward
with love, care, and compassion. I want to be the person who has a zest
for living. I want to be a positive influence who will bolster and support others
regardless of their troubles, illnesses, and issues. This is my mission and my hope for others as
well.
I want
to preach my mission and yet it has all been said before. Does it bear repeating? Of course!
Over and over we say it to ourselves and to others:
'Turn off the TV, the electronic
devices, the distractions. Focus on the
people in your life, the love you feel, the nurturing, the caring, the
laughter. If it is not present, then
find it or create it. Treat each day as
if it were your last and live it to its fullest.'
We hear this message so often. Why do we not
take any action? WHY?!!! I have only to
look within myself for the answer. There
is that constant battle to maintain a light within when there is always the
temptation to succumb to the darkness that also resides there. I am bombarded by temptation to ignore the
light. I am distracted by everything
that turns my head. Vigilance...awareness...a
strong mission statement that I check and recheck keeps my journey on
course. There are stop signs along the
way and even road closures that require detours, but with the strong vision of
what I want from life, I find fulfillment and true happiness.
Sunday, March 20, 2016
Dying !
"Ugh! I feel
awful!"
I look up from my computer and study my mother's face. Her expression is a grimace. She looks like she is dying. I am immediately alarmed and ask what is
wrong.
She replies,
"Everything." She is looking
around the room with a growing panic.
"Oh no! Do you
have to throw up?" I ask nervously.
"No," she shakes her head blinking and looking
confused.
"Are you in pain?"
"No."
"Are you dizzy?"
"No."
I am trying to go through the litany of medical
conditions. Hives, shaking, fever,
coughing, nausea, rash, seizures, stroke, heart attack, bleeding out your eyes,
uh...uh...I am running out of things to ask. Mom is now flopping around on the sofa,
gasping and miserable. Her hand flips at
her throat like there is something in her esophagus. Suddenly it dawns on me that I have overlooked
the obvious: "Do you have indigestion?"
"Yes!"
GAAAAA. My mother's
flare for drama is not missed by me as I give her two antacid tablets and tell
her to chew them. Two minutes later Mom is sitting comfortably
ensconced on the sofa and when I ask her if she is feeling better she remarks
that she is fine. She shoots me a look
that says I must be nuts to ask that question.
There is no memory of her recent 'brush with death' . I think back to the biscuit she had for lunch
slathered with butter. I think about the
giant cookie she ate for dessert. Fifteen minutes later she was back at the island
waiting for food. (She forgot that she
had just eaten.) I worry that Skip will
feel sorry for her and feed her again. I
leave the kitchen and remind Skip that he is to keep Mom from overeating. Since she has lost her memory she assumes
that it is always time to eat. The
saddest part of it is that I am continuously cooking to keep her happy and
occupied. She eats snacks, little
treats, has her afternoon tea, and her three meals a day. Through it all she
retains a slim figure while I gain weight with each turn of the mixing
bowl. My genetic heritage skipped right
over my mother.
I retrace the activity that brought my mother to her
knees. It was her afternoon tea. My sainted husband who possesses a strong
desire to please my mother gave her a rich salted caramel brownie with cream
cheese frosting alongside her tea. Now
it is getting close to dinnertime and I will probably have to wrestle Mom to
the floor to keep her out of the kitchen.
Skip walks in from having run an errand. He is carrying bags from the grocery
store. I know that there are things in
there that Mom shouldn't have. I rush to
hide them away. We are slow
learners. If food is out on the counter,
Mom samples it regardless of whose it may be. Last week, I made a lovely icebox cake. It was a rich concoction made with heavy
whipping cream, Kahlua, chocolate, lots of cream cheese, and layered in
decadently rich chocolate chip cookies.
Skip left half of his over and had it on the counter. When he went back to get it, there was
nothing but a trail of crumbs. Someone had pilfered his dessert and upon
visiting the scene of the crime we deduced that the evidence led back to
Mom. It was clear from the expression on
her face that she wasn't feeling well.
She had overeaten.
Mom challenges us on an hourly basis. This is one among many issues. However, I
consider the alternative and am grateful for who she is. Yes...it could be worse.
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