I know that my sense of humor sometimes downplays the angst I feel about my mother's progressing Alzheimer's. Skip and I are handling it the best we can. As a new situation arises we deal with it. We are coping and have been for several years now. But sometimes I just HAVE to laugh.
Among those things I find funny is how my mother responds to my attempts to protect her. For the longest time, for example, we were reluctant to install a camera in my mother's room preferring to allow her privacy while monitoring her via an alarm system and a baby monitor that enabled us to hear what was going on in her room. If she needed us we were there in an instant. Of course, that was when she was more conversant. But now Mom doesn't say much. If there is an emergency she is likely to remain silent. We often hear the strangest noises coming from upstairs without a clue as to what they might be.
For weeks, I kept hearing a sound that sounded like a zipper being zipped over and over again.
"What's that sound?" I asked Skip one night. "I keep hearing it."
"What sound?" Skip replied. He strained to listen more closely to the monitor even carrying it into the family room where we sat watching TV.
I listened and waited. There was nothing but the sound of my mother's walker banging into the wall. "Well, it's gone now. But I heard it!"
"Hmm." Skip looked at me with an expression of doubt.
A minute later I heard the 'zip' again. "There! Did you hear it?" I shouted triumphantly.
"Yes! Hmmm..." He said again. It was somewhat like taking my car to the mechanic complaining of a squeak and having them actually hear it. I felt vindicated. Now we both wondered and mused as to what the mystery sound could be. There were no zippers in Mom's room. Perhaps she was raking her fingernails across something that was textured. There were other sounds that were similar. We were able to identify those sooner or later; like the hairbrush scrubbing the seat of her walker, the plastic bags being folded and refolded then stuffed into the storage compartment of the walker, the locking of the brakes, the wheels squeaking There was the sound of Mom pulling on the locked door of her closet, the click of the light going off and on, sheets being ruffled, drawers being opened and the contents being moved around. All of these sounds were detectable. The 'zip' was not. It was the last straw--what drove us over the edge to purchase a camera.
The next day, Skip came home with a super, duper, state-of-the-art camera with night vision, and a wide-angle lens. The associated app enabled us to remotely view on Skip's cell phone and even record activity. After setting it up all we had to do was wait until we put Mom to bed. We hovered over Skip's phone like we were watching a reality TV show. All that was missing was the popcorn snacks.
"Look! She's moving!" I announced. Mom changed positions on her pillow and pulled at the sheet. We watched with rapt attention. After several uneventful minutes something happened that we had not expected. Mom sat up and moved to the edge of the bed where she continued to sit for the next three hours--not changing her position other than to lower her head to her chest. In the beginning we weren't sure what she was doing but quickly determined that she was sleeping sitting up, head in hands and swaying slightly back and forward. Skip went upstairs after the first few minutes to try to put her back on her pillow but the moment he left the room Mom popped back up and resumed the sitting/sleeping position. So that's how she continued until we grew weary of watching. Then came the sound--the 'Zip!' I ran to the phone to see her bent over her walker. 'ZIP'.
"Oh my God! It's in her walker!" I exclaimed jubilantly. I watched as she lifted the lid of the seat and on the back side there was a small compartment I had never noticed. Lo and behold there was a zipper! Mystery solved. Thank you super-duper-night-vision-camera!
As the days turned into weeks, we discovered that the indoor camera was more of a menace than a helpful tool. Watching Mom at night became a frustration rendering us nervous and constantly sitting vigil to her nighttime wanderings. We realized that Mom was awake a great proportion of the night and early morning hours. She took catnaps and the rest of the time simply wandered about aimlessly or manically. Furthermore, since my phone didn't have a compatible operating system, Skip became the designated 'watcher'. One night, while observing the nocturnal activities, Skip gave a loud groan. "UGH! She just took her nightgown off! She's NAKED!!!"
"Turn it off, turn it off!" I yelled.
Skip dropped the phone and rubbed his eyes like his retinas were burning. I retrieved the phone and discovered that my mother preferred wrapping herself in bedsheets to wearing a nightgown. She began pulling at the sheet and twisting herself in it like a mummy. The worst part about that was the sheet, being loosely attached to the bed rendered it impossible for Mom to cruise around the room. She would manage to move about a foot away from the mattress and get yanked backwards. I watched her fall back on the mattress. Being resilient and determined, she tried again, and again...and again. Each time she bounced backwards returning like a Boomerang. I debated running to her rescue but knew that she would just keep doing it. Hadn't we seen it before? The first week of our remote viewing we had run upstairs to stop Mom's potentially dangerous actions, the near-accidents, the potential falls because she had forgotten to use her walker. Then, realizing that the moment one or the other of us exited the room after righting the situation, Mom was right back at whatever she was doing before we stopped her. Such was the case with us trying to get Mom to lie down. I watched as Skip left the room and immediately my mother popped back up to her sitting position. I wanted to laugh, thinking that she was like a human Boomerang...A MAMA-RANG, or maybe we'd call her 'Gramarang'. Yeah, I liked that just fine. It worked for everything she did lately. We'd point her in the direction of the bathroom and she would circle back without stopping. Or she would walk past us when she came inside and we could see her making a bee-line for the food on the counter. We would run interference turning her in the opposite direction but she would doggedly Gramarang herself back to the food.
"I wonder how long she's done that--the sitting up thing?" I mused out loud.
"She's probably done all kinds of things that we would worry about if we had known," Skip replied.
"Yeah...but now we DO know!" I replied pointing at the camera. "UGH. We'll never get any sleep." Then I thought about it. We could attempt to restrain her, to drug her, to drive ourselves crazy running up to her room to save her from herself; or we could allow her to do what she wanted. She was 99 years old and had earned the right to do that. Why did I feel the need to protect her? Someone her age, her condition, and her lack of understanding COULDN'T be protected. The moment we put a stop to one thing that could be a hazard, she would turn around and repeat it. I sighed deeply and picked up the cell phone, turned the camera off and put the phone on the counter. There would be no more Gramarang-watching tonight!
Showing posts with label forgetfulness. Show all posts
Showing posts with label forgetfulness. Show all posts
Thursday, August 30, 2018
Wednesday, July 18, 2018
Blank Screens and Striptease Sundays

Mom has supplied me with enough
material to fill a book this past week.
Late stages Alzheimer's provides us with quite a challenge, lots of
mess, plenty of difficult moments, and more and more that we can shake our
heads at. I am finding that every day she
has at least one outburst, stubborn, or agitated moment. She ignores, plays deaf, scrambles her words
and thoughts, misunderstands, does something unprecedented, does something
unsafe, and throws the house into turmoil.
She's just one little old lady but my oh my can she create drama!
So...this week when I was
mentally and physically exhausted and wanted her to go to bed I announced
cheerfully, "It's bedtime, Mom. Are
you ready to go to bed?" (I
shouldn't have asked.)
Mom's answer was a definite,
"NO!"
"No?" I replied a bit
dumbfounded. "Aren't you
sleepy? I thought that you wanted to go
to sleep."
Mom didn't reply. She turned to watch TV. Evidently there was a commercial on that held
far more interest than human interaction.
"Mom? Can you answer me please?"
Mom continued to stare at the
television even leaning forward to feign far more interest than usual. (Now, I must take a moment to clarify that
Mom never follows anything that is on
TV. She watches but doesn't know what
she is watching and has no comments about anything that is on. If I ask about something like, 'Did you see that
cute dog?' she stares without comment and if I continue to ask, she tells me
that she wasn't watching.) So, I knew that the TV was not something that was
distracting her with a riveting message.
"MOM! Pay attention to
me!" I insisted. "Did you hear
me?"
(No answer. Not even a twitch.)
I could feel the impatience
welling up inside.
"Mom! MOM! MOM!
M-O-M!!!!"
Still nothing.
I tapped her on the arm. "Mom can you hear me?"
"I don't want to go to
bed," she answered.
(AHA! She did hear me! Now I knew for a fact that she was simply
choosing to ignore me.) "Turn the TV off," I told Skip. Then I stepped in front of my mother and
lectured her like she was a small child.
"You're being rude. When people talk to you, you should answer."
Mom looked past me to the blank
TV screen and remained silent. I sighed
deeply and sat down relishing the quiet in the room with the TV turned
off. "Okay, we'll just sit here
then. I went back to my laptop where I
was editing something and Skip went back to his laptop to read a news
article. The fan overhead continued to
click as the blades circled around and around rather like a clock...'tick, tick, tick, tick.' It was making me sleepy. Minutes passed and I looked up to see my
mother staring blankly at the TV. I
couldn't help myself...
"How's that show you're
watching?" I asked.
"It's okay," she
answered without enthusiasm
.
"What's it about?"
"Oh. I don't know yet, I just sat down."
"Well let me know if it's
good," I continued cheerfully. She leaned forward as if to see
the screen better. I waited ten more minutes
enduring the frustration of watching my mother stare at a blank screen until I
finally had enough and got up, took Mom by the hands and led her to her
room. "You're going to bed
now," I told her kindly but firmly.
Mom followed like a dutiful child.
Fast forward to Sunday when the weather was warmer but not as hot as
last week . That's when I had the
unfortunate encounter with Mom (when I tried to bring her inside from the
screened porch because she was frying her brains out there. ) She had a tantrum and lashed out at me yelling
that she wasn't hot. Well, this week and
particularly Sunday when it was at least 8 degrees cooler, I looked up from
my seat in the family room where I can keep an eye on Mom just outside the
window. I noticed her moving around in
her chair. I thought that maybe she was getting ready to come back inside. Skip was sitting across from me and blocking
a complete view so I asked if he could see what she was doing.
"Oh no! She taken her blouse off!" He announced
with a groan.
I too groaned audibly. Needing to save my work on my laptop, I put
off going outside for a minute.
Meanwhile Skip decided that he needed to be anywhere but where he was
and made a quick retreat to his office.
By the time I stood up Mom was bending over and wriggling about. I rushed to the door in time to catch her
taking her pants off and about to remove
her bra. "STOP!" I told her.
"What are you doing?!"
"It's too hot!" Mom
complained pulling at her bra.
"Nope...no...nun uh. These stay on!" I began to put her pants back on and Mom
threw a fit.
"It's too hot! Stop it!!!"
I strong-armed her back into her
clothes and took her inside explaining fruitlessly that one doesn't take one's
clothes off in public. (In fact, with
the new construction going on next door to us if it had been a weekday Mom
would have caused some poor workman to have nightmares.)
When Mom walked back inside I
could detect the familiar smell of wet diapers and told her to go to the
bathroom.
"I don't have to."
Hmm. I guess I had to agree that the horse was
already out of the barn so to speak. I looked
away for a moment and Mom sat down on Skip's chair. "Don't sit there!" I yelled as I
turned back.
"Why not?"
"Because you're wet and
smelly," I mumbled. I knew that she
couldn't hear me and that made it okay to verbalize. While she waited for an answer I did what I
try not to do. I let my inner child out deciding
to give her a taste of her own medicine. I turned away from her and averted my gaze. I
acted like I never heard her question.
She stood there waiting for me to answer but stubbornly I refused. Then I noticed that there was a TV commercial
on.
"Yep," I told myself. "Two can play this game." I walked over to the TV and stood there
totally engrossed in a toilet bowl cleanser commercial because, well, you
know...it was just so very interesting!!!
Thursday, July 12, 2018
Better Late than Never!
Today I posted something on Facebook...a confession of sorts. Here was the post:
"Well
evidently before I get all full of myself for keeping track of
everyone's birthdays, I should double check for accuracy. So, I had the
gift, the greetings, everything ready to go and waited for the right
day to celebrate the birthday. She (you know who you are!) thanked me
as I gushed over the greetings, the moment, the day. I told others to
wish her happy birthday and we sang our best and loudest 'Happy birthday
to you...' only to find out it was the day before. Oops. To make
matters worse I insisted that I was right because it was on my calendar!
Hahahaha. Just a little embarrassed."
There followed comments about similar faux pas moments among my friends along with a comment that resonated with me, "Well, better late than never!"
BETTER LATE THAN NEVER. Hmm...I wonder if that also applies to the time my husband and I got all dressed up to attend a party at his coworker's home. It was kind of quiet when we approached the house and we thought that it was strange that the attendees were so 'orderly' and also wondered about the absence of cars parked on the street. I asked my husband if he was sure of the date and time and he repeated the information back to me. Okay then...we knocked timidly on the door and waited. Finally, the host peaked around the small crack in the opened door and looked at us inquiringly. We noticed that his hair was tousled and he was wearing a pair of lounging pajamas. (I wondered about the kind of party this was!) Our bewildered host asked what we were doing there and when we appeared surprised by his question the 'host' added, "You're not here for the party, are you?"
"Why yes, we are," Skip replied.
His co-worker laughed and said, "Well, you missed it. It was yesterday!"
I shot one of those 'If-looks-could-kill' glares at my husband, handed off the present we had brought and made a hasty retreat to the car vowing that I would never rely on Skip to make any social arrangements again! However, I always get in trouble when I take on the holier than thou persona. I must continuously remind myself that I too am capable of small slip-ups. (Please don't tell Skip. I will never actually admit this out loud.)
Parties seem to be the areas of the most errors. I'm not sure why but this is our biggest failing. Wrong times, wrong addresses, and wrong attire are among the biggest blunders.
I am reminded of the invitation for a Halloween party where the call came to me and I told Skip that it was a costume party. (The hostess said that we should come dressed metaphysically because she was having a fortune teller come.) It goes without saying that Metaphysical wearing apparel is not something one finds in a special section of the department store but knowing that the hostess was a bit bizarre I figured that she would be done up in something outrageous, and we as her guests could not be party-poopers.
Okay then, an appropriate Halloween-type costume seemed in order. I planned what we would wear putting together my mid-eastern 'swami' like look while leaving Skip to figure out what he was going to do make himself look appropriately clad as an oracle. As the day of the party wore on, Skip was still not home from work and I thought that slapping together a costume for Skip was becoming less and less a possibility. When he finally got home there was only time for me to suggest that he wear a black turtleneck, black pants and I painted a THIRD eye on his forehead. (Get it? A third eye as in psychic!) Anyway, off we went to the party. As we approached the door I checked my robes, my jewelry, my headdress, and my heavy exotic makeup. I looked at Skip's simple but effective psychic self and congratulated myself on the paint job I did on his third eye. Smiling broadly the hostess opened the door. She was dressed in a pretty silk shirt and deep navy blue skirt embellished with embroidered moons and stars. I looked past her to see a room full of guests in cocktail attire. Puzzled, I asked, "Um...isn't this a costume party?"
"No!," she answered. "It's just that I was having a Fortune Teller so I thought that you might want to dress in more mystical kinds of clothes,"she explained laughing. "Oh!" she hastened to add. "You look fabulous. Why YOU could be our Fortune Teller too." I turned to look at Skip to see how he was reacting and all I could see was that darn third eye glaring at me! Quickly, Skip raised his index finger to his forehead and began scrubbing roughly at his painted eye. By the time he stepped inside he looked perfectly acceptable while I looked like some bizarre demented psychic. All night long, the guests asked if I was the Fortune Teller and after a while I grew weary of explaining the mistake. Meanwhile the REAL Fortune Teller was downstairs struggling with her readings. It seemed that our hostess had found someone who was less gifted in that department than the party guests would have liked. A few women confessed that they were offended by her readings and one guest actually burst into tears. That's when I made a decision to save the humiliation I was feeling and told people that I was the 'Upstairs Fortune Teller' and proceeded to tell fortunes all night long. "You will be taking a much-needed trip next year," I told a young man.
"Oh that's wonderful news. Where am I going?" he asked.
"Uh...uh...you will be traveling many miles. It is somewhere you really want to go. You will make this plan later." (How ambiguous was that?!)
All night long, people told others, "Oh, that lady is amazing. You should get a reading."
"I see money coming to you. It's not much but it will make you happy to have it. It will be sometime in the late Spring or early Summer of next year. You will be expecting it." (It was a safe bet that income tax refund will come through then!)
Ah. The moments of brilliance often overshadow those moments of humiliation! They do, however remind me that I have more funny stories of embarrassing moments than anyone I know. Don't get me started...I could be here all night!!!
There followed comments about similar faux pas moments among my friends along with a comment that resonated with me, "Well, better late than never!"
BETTER LATE THAN NEVER. Hmm...I wonder if that also applies to the time my husband and I got all dressed up to attend a party at his coworker's home. It was kind of quiet when we approached the house and we thought that it was strange that the attendees were so 'orderly' and also wondered about the absence of cars parked on the street. I asked my husband if he was sure of the date and time and he repeated the information back to me. Okay then...we knocked timidly on the door and waited. Finally, the host peaked around the small crack in the opened door and looked at us inquiringly. We noticed that his hair was tousled and he was wearing a pair of lounging pajamas. (I wondered about the kind of party this was!) Our bewildered host asked what we were doing there and when we appeared surprised by his question the 'host' added, "You're not here for the party, are you?"
"Why yes, we are," Skip replied.
His co-worker laughed and said, "Well, you missed it. It was yesterday!"
I shot one of those 'If-looks-could-kill' glares at my husband, handed off the present we had brought and made a hasty retreat to the car vowing that I would never rely on Skip to make any social arrangements again! However, I always get in trouble when I take on the holier than thou persona. I must continuously remind myself that I too am capable of small slip-ups. (Please don't tell Skip. I will never actually admit this out loud.)
Parties seem to be the areas of the most errors. I'm not sure why but this is our biggest failing. Wrong times, wrong addresses, and wrong attire are among the biggest blunders.
I am reminded of the invitation for a Halloween party where the call came to me and I told Skip that it was a costume party. (The hostess said that we should come dressed metaphysically because she was having a fortune teller come.) It goes without saying that Metaphysical wearing apparel is not something one finds in a special section of the department store but knowing that the hostess was a bit bizarre I figured that she would be done up in something outrageous, and we as her guests could not be party-poopers.
Okay then, an appropriate Halloween-type costume seemed in order. I planned what we would wear putting together my mid-eastern 'swami' like look while leaving Skip to figure out what he was going to do make himself look appropriately clad as an oracle. As the day of the party wore on, Skip was still not home from work and I thought that slapping together a costume for Skip was becoming less and less a possibility. When he finally got home there was only time for me to suggest that he wear a black turtleneck, black pants and I painted a THIRD eye on his forehead. (Get it? A third eye as in psychic!) Anyway, off we went to the party. As we approached the door I checked my robes, my jewelry, my headdress, and my heavy exotic makeup. I looked at Skip's simple but effective psychic self and congratulated myself on the paint job I did on his third eye. Smiling broadly the hostess opened the door. She was dressed in a pretty silk shirt and deep navy blue skirt embellished with embroidered moons and stars. I looked past her to see a room full of guests in cocktail attire. Puzzled, I asked, "Um...isn't this a costume party?"
"No!," she answered. "It's just that I was having a Fortune Teller so I thought that you might want to dress in more mystical kinds of clothes,"she explained laughing. "Oh!" she hastened to add. "You look fabulous. Why YOU could be our Fortune Teller too." I turned to look at Skip to see how he was reacting and all I could see was that darn third eye glaring at me! Quickly, Skip raised his index finger to his forehead and began scrubbing roughly at his painted eye. By the time he stepped inside he looked perfectly acceptable while I looked like some bizarre demented psychic. All night long, the guests asked if I was the Fortune Teller and after a while I grew weary of explaining the mistake. Meanwhile the REAL Fortune Teller was downstairs struggling with her readings. It seemed that our hostess had found someone who was less gifted in that department than the party guests would have liked. A few women confessed that they were offended by her readings and one guest actually burst into tears. That's when I made a decision to save the humiliation I was feeling and told people that I was the 'Upstairs Fortune Teller' and proceeded to tell fortunes all night long. "You will be taking a much-needed trip next year," I told a young man.
"Oh that's wonderful news. Where am I going?" he asked.
"Uh...uh...you will be traveling many miles. It is somewhere you really want to go. You will make this plan later." (How ambiguous was that?!)
All night long, people told others, "Oh, that lady is amazing. You should get a reading."
"I see money coming to you. It's not much but it will make you happy to have it. It will be sometime in the late Spring or early Summer of next year. You will be expecting it." (It was a safe bet that income tax refund will come through then!)
Ah. The moments of brilliance often overshadow those moments of humiliation! They do, however remind me that I have more funny stories of embarrassing moments than anyone I know. Don't get me started...I could be here all night!!!
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